Sunday, March 29

Medicinal use



HuffPost has another sad story:
there's nothing comical about tens of millions of Americans being busted, frightened out of their wits, losing their jobs, their student loans, their public housing, their families, their freedom...

And show me the humor in a dying cancer patient who's denied legal access to a drug known to relieve pain and suffering.

Having just returned from Minnesota whose state lawmakers are entertaining a conservative, highly restrictive medical marijuana law, I can tell you what's not funny to Joni Whiting.

Ms. Whiting told the House's Public Safety Policy and Oversight Committee of her 26-year-old daughter Stephanie's two-year battle with facial melanoma that surfaced during the young woman's third pregnancy. The packed hearing room was dead quiet as Ms. Whiting spoke of Stephanie's face being cut off "one inch at a time, until there was nothing left to cut." She spoke of her daughter's severe nausea, her "continuous and uncontrollable pain."

Stephanie moved back to her family's home and "bravely began to make plans for the ending of her life." The tumors continued to grow, invading the inside and outside of her mouth, as well as her throat and chest. Nausea was a constant companion. Zofran and (significantly) Marinol, the synthetic pill version of THC, did nothing to abate the symptoms. Stephanie began wasting away. She lost all hope of relief.

Joni's other children approached their mother, begged her to let their sister use marijuana. But Ms. Whiting, a Vietnam veteran whose youngest son recently returned from 18 months in Iraq, was a law-abiding woman. And she was afraid of the authorities. There was no way she would allow the illicit substance in her house. As she held her ground, her grownup kids removed Stephanie from the family home.

Three days later, wracked by guilt, Joni welcomed her daughter back. "I called a number of family members and friends...and asked if they knew of anywhere we could purchase marijuana. The next morning someone had placed a package of it on our doorstep. I have never known whom to thank for it but I remain grateful beyond belief." The marijuana restored Stephanie's appetite. It allowed her to eat three meals a day, and to keep the food down. She regained energy and, in the words of her mother, "looked better than I had seen her in months."

Stephanie survived another 89 days, celebrating both Thanksgiving and Christmas with her family.

Shortly after the holidays, Stephanie's pain became "so severe that when she asked my husband and me to lie down on both sides of her and hold her, she couldn't stand the pain of us touching her body."

Stephanie died on January 14, 2003 in the room she grew up in, holding her mother's hand. A mother who, as she told the legislative committee, would "have no problem going to jail for acquiring medical marijuana for my suffering child."

Following Joni Whiting's presentation, it was all I could do to hold it together during my own testimony. Such was the power of this one woman's story. And of the sadness and rage roiling inside me as I reflected on the countless other Stephanies who are made to suffer not only the ravages of terminal illness and intractable pain but the callousness and narrow-mindedness of their leaders.

When I finished my testimony, a local police chief, a member of the committee, angrily accused me of disrespecting the police officers in the room--who'd shown up in force, in uniform, to oppose medical marijuana. Wearing a bright yellow tie with the lettering "Police Line, Do Not Cross," the chief charged me with placing more stock in the opinions of doctors than of Minnesota's cops.
It is difficult to articulate my anger at cops and prosecutors who believe their opinion on treatments ought to matter more than that of doctors and patients.

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